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Doctors remove huge 15kg tumour from inside 16-year-old girl’s womb

INDIA, Punjab: A team of doctors of Sarin Hospital in Punjab state of India removed 15 kg of lactose from the child of a 16-year-old girl and gave her new life. The team included cancer treatment specialist Dr Vivek Gupta, head of the hospital Dr. Sanjeev Sarin, Dr. Vivek Mahajan, Dr. Geetanjali Sarin and Dr. Sudhir. girl’s father Ravidarpal Singh, resident of ferozpur district of Punjab, India told that her daughter had a problem of having a menstruation for a long time,

photo by Rare shot

due to which she was quite unwell. She did not recover after treatment. Her family members suggested treatment in Sarin Hospital, located at Batala Road, Amritsar. During treatment, it was revealed that there is cyst in uterus.  The doctors team has done a successful operation. Dr. Sarin told that this nausea could have been fatal for the patient. Operation done under the leadership of

photo by Rare shot

Dr. Vivek Gupta has been successful. It is amazing to get 15 kg of neoplasm.

 

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Man assaulted with large knife on head, saved by doctors

Story by; Harpreet Kaur

India (Bhopal) Patient named Ravi 25 yr / male belongs to Rajgarh district of Madhya pradesh was  assaulted  with a gupti(large knife) which entered from the left frontal region just above the left eyebrow and reached upto the right subtemporal region. It was four and half inches inside the skull. The patient was in a bad shape. Dr. I.D Chaurasia of hamidia Hospital of Bhopal along with team planned to operate the patient.

Photo by Rare shot

The inherent dangers associated with surgery were that it was life threatening, the patient might have loss of vision in the left eye, might have developed changes in higher mental functions and there were fair chances of intracranial infection. Doctor along with the team completed the surgery in one and half hour and successfully removed

Photo by Rare shot

the dangerous weapon. Presently, the patient is conscious and doing well without any loss of vision and sensorium. Hospital staff has started liquid diet from today morning. But patient will keep under observation for few more days.

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Five leopard cubs died

India,(Maharashtra) Five leopard cubs died after farmer sets fire in field to smoke out snake in Pune district of Maharashtra state in India. The incident was reported to forest department officials on Wednesday following which a team of rangers was dispatched to the spot in Ambegaon taluka.
Officials with the forest department in Pune asserted that the farmer in question suspect a snake in the trash and decided to set that part of his field ablaze. The five leopard cubs were ten days old, said the rangers, adding that farmers usually burn their fields before the harvesting of sugarcane. We have reason to believe that the mother of the cubs could have gone in search of food after leaving them there.However, the incident has sparked terror amongst locals who fear that the cubs’ mother will return in search for them and may turn violent upon not finding them anywhere. Owing to these concerns, range forest officer of Ambegaon Prajot Palve has deployed rangers for night patrolling in order to watch out for the villagers. Locals have also been asked to be watchful of the mother leopard.  This is not the first time leopard cubs were found in sugarcane fields in the area. In March of this year, two leopard cubs were rescued by forest department from a sugarcane field in the area. Forest rangers said that decreasing forest cover has prompted more and more leopards to deliver cubs in sugarcane fields and leave the spot once the cubs grow up
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1070 Stones removed from gall bladder

 

Hussain sehlati Lami, 42 year male from Baghdad city of Iraq came to Jamnagar city of Gujraat for bussiness purposes. Suddenly he felt severe pain then he consulted Dr. Avinash Tank (Gastro and obesity surgeon) at dwarka clinic Ahmedabad. Blood tests and ultrasound revealed that he is suffering from stones in gall bladder

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and few stones migrated to common bile duct along with bile. Initially his stones of CBD was removed by endoscopy. But 1070 stones of gallbladder removed by leproscopeic surgery according to Dr. Avinash,” it was a difficult surgery but our team made it possible in 30 minutes”.Hussain was kept under observation and discharged on next day. Hussain is contended with his treatment and soon he will left for his country.

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Farmer wakes up to find crocodile under his cot

VADODARA(INDIA) 30-year-old farmer Babubhai Parma from Vadodara city of Gujarat went to rest after the routine exercise of tying his cattle to the tethers. But at 1.30 am, Paramar was woken up by the sound of dogs barking in his neighbourhood. The luck was on his side as he sported an eight-feet-long female pregnant crocodile under his cot. Parmar somehow managed to escape and raise an alarm that brought the neighbours to his house. The giant crocodile reportedly sneaked into Parmar’s house from the nearby Malataj lake in Anand district of Vadodara. The lake is just 500 metres away from Parmar’s house.

photo by Rareshot

The locals took the help of forest department officials for safely rescuing the pregnant crocodile who apparently had come out of the lake to lay her eggs. “It was an eight-feet crocodile that was pregnant. On any given day, I would have rescued the crocodile myself, but since she was pregnant, we didn’t want to take chances,” Malataj’s Sarpanch Durgesh Patel told. The presence of crocodiles in and around the lakes of several Vadodara districts such as Anand and Kheda is no big deal for the residents.

The locals say they are used to living at peace with the giant reptiles and would often rescue them. As per official figures, there are nearly 159 crocodiles living in various lakes of the twin districts. Their count has reportedly gone up in the past several years owing to zero human interference in the ecology of the lakes.

photo by Rareshot

“The wetlands of Malataj, Deva and Petli villages have a healthy population of crocodiles. They come out of the lakes in the nesting season to safely lay their eggs and are often searching for such places. A unique citizen initiative is also held to ascertain the count of crocodiles in the lakes of these three villages.

 

 

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An 18-month-old boy who fell into a 60-feet deep borewell, rescued

INDIA ( Haryana) An 18-month-old boy who fell into a 60-feet deep borewell on Wednesday evening in Haryana’s Hisar district was rescued by on Friday. The toddler was fine after he was rescured from borewell, where he was trapped for around 47 hours.Indian Army and National Disaster Response Force (NDRF) personnel and local authorities were involved in the rescue operation in Balsamand village after Nadeem Khan( Child) fell into the borewell near his house while playing on Wednesday evening.

Photo by Rareshot

Nadeem Khan, the son of labourer Azam Khan, was fine and that the rescue team had dropped oxygen tubes inside the borewell to help him breathe. A GPS tracker had been sent inside the borewell to track the exact location of the child. As soon as the team got the location, the process to rescue the child was expedited. Closed-circuit television or CCTV cameras lowered into the well showed the boy sitting with his back to screen.Sources said that the NDRF team and army personnel dug another 70-ft hole about 17-ft away from the main borewell where the child fell. Earthmovers and tractors have been pressed into service as two ambulances could be seen near the site.“On Wednesday, it was about 5.15 pm when the child was playing and he suddenly fell inside the borewell,” a local resident and panch of village Khursheed Ahmed said.His parents, who were also near the spot, informed the village sarpanch who then contacted the police and local administration. The local police had a tough time as the villagers from nearby village crowded the spot and gathered to see the rescue process. The accident has once again brought into focus the dangers posed by uncovered borewells, which have turned into death traps for children in the past

Photo by Rareshot

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Sisters With Fading Beauty

Story By: Umesh Saxena

INDIA (Madhya Pradesh) Three real sisters Palak, Aaliya and Alisha are suffering from xeroderma pigmentation (XP) – a rare genetic disorder that strikes one in 250,000 people.

Rareshot photo by Ajay Verma

Becauseof XP the girls, born with ‘milky-white’ skin, have layers of sunburn in their skin, turning their face and body into dark and patchy layers. Mother Zuvi Bano said,”Doctors give a long list of lotions, creams, shampoos and soaps for use. But even after regular use for the recommended period, we see no improvement. Zuvi who has three other daughters without XP added: ‘Their condition is only getting worse with time.

Rareshot photo by Ajay Verma

Girls were born very fair, like milk. But as they grew their skin started turning dark. Family had exhausted all the money they had but when they saw no improvement, they stopped taking them to doctors. Parents are worried for their little girls and think what will happen to their daughters. No-one will marry them. They are hoping for miracle so that children get cured and live normal life.

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118 yrs old’, world’s oldest woman to get pacemaker

India, Punjab( Ludhiana) 118 years old, a woman from Ferozepur has become one of the oldest persons in the world to have a pacemaker fitted. Kartar Kaur,

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who had never been to a doctor all her life, underwent surgery to implant the device at SPS Hospital here after being found to have a weak heartbeat. Doctors claimed she had become the oldest person to undergo the procedure, the last record being of a 107-year-old.We used to have a diet full of desi ghee and butter and would work strenuously to digest the fats. As such, we never landed in a doctor’s clinic. It’s at this age that I had to go under the knife and all went well as I had taken good care of myself when I was young,” the centenarian quoted .Dr Ravninder Singh Kuka,

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interventional cardiologist said,” Kartar Kaur’s case was unique but they took it as a challenge. “When she was admitted, she was unconscious and her blood pressure was low too. We used a temporary pacemaker to tide over the immediate threat and started

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preparing for the bigger challenge (of a permanent implant),” said Dr Kuka. “But a coordinated effort and her strong will helped us pull it off.

 

 

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Terrorists Attack

INDIA, SRINAGAR (Pulwama ) 
Aproximately 45 Central Reserve Police Force (CRPF) personnel

were killed and many others injured when terrorists targeted a convoy with a car bomb at Awantipora in Jammu and Kashmir’s Pulwama district on Thursday. It is a worst terror attack in Kashmir

Rareshot photo by Shakeel-ul-Rehman

since the start of the century.Acording to the sources, the vehicle used by terrorists was a Mahindra Scorpio carrying more than 300 kg of explosives.The injured have been moved to the nearby army base hospital in Srinagar.  Pakistan-based terrorist group Jaish-e-Mohammed has claimed responsibility for the attack. Home Ministry sources said that terrorists triggered the car bomb while more than 70 vehicles with over 2,500 CRPF men were on the Srinagar-Jammu highway.

Rareshot photo by Shakeel-ul-Rehman

The Govt. authorities have termed it as a “serious breach” of security.

Official sources said that the attack was carried out by a Adil Ahmad Dar alias “Waqas Commando” a resident of Kakapora, who had joined the terror outfit last year.According to sources, army personnel were being transported at one go because the Srinagar-Jammu highway

had been shut for the last two days due to bad weather. The convoy had left Jammu around 3:30

Rareshot photo by Shakeel-ul-Rehman

am.The National Investigation Agency will probe the attack along with the Jammu and Kashmir Police.

 

 

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Leopard attack in densely populated village of Punjab

INDIA ( Punjab) Jalandhar villagers in Punjab, India witnessed leopard attack amid dramatic chase to corner it The leopard was first spotted by Paramjit Kaur in the courtyard of her house at around noon of 31st january. Police was informed immediately and a team of around 12 people from Wildlife Department was rushed to the spot.Panic gripped when an adult leopard strayed into the densely populated village.

Rareshot photo by Harish

The lone big cat attacked six people and drew the rescuers into hours of cat-and-mouse chase, with a 12-member team from the Wildlife Department managing to corner it outside the toilet of a locked house in the evening. It was finally caged post 11 pm after an 11-hour struggle, and sent to Chandigarh’s Chhatbir Zoo under medical supervision.

Rareshot photo by Harish

Earlier people gathered on rooftops, making videos and pelting stones at the animal and in turn delaying the operation by several hours. “Police tried to disburse people but they did not move and hindered the operation,” said District Forest Officer (Wildlife) Khushwinder Singh.  As the leopard entered one of the resident’s house named Jaswinder Singh. He tried assisting the wildlife team in trying to trap it in a net. The animal attacked Jaswinder while escaping from the house. Later,

Rareshot photo by Harish

it was spotted roaring in a nearby street amid screams of bystanders, all of whom rushed inside houses to save themselves.Sukhwinder Kumar, another villager who was attacked and sustained injuries on his hand, said that the leopard was moving in the area since last night. After evading capture for around four hours, the leopard first went to the open fields in the village, and later entered a house that had its main gate locked. It was at this spot that the team managed to administer tranquilizer to it for the first time.“We managed to corner it inside the house. But it could not be immediately caught as it was big and agile,” said DFO Khushwinder Singh, adding that two injections were administered on the animal, but after few minutes of unconsciousness the leopard again became active. With several people pelting stones on it, animal became aggressive and attacked them, including an employee of wildlife department, he added.Khushwinder said that a team of doctors from Chhatbir Zoo, led by Dr M P Singh, reached the spot after 8 pm and administered another injection to the leopard. The DFO added

Rareshot photo by Harish

that the leopard was conscious till 11 pm, three hours after being administered a tranquilizer by the team of doctors from Chandigarh. Later on leopard sent to chhatbir zoo near chandigarh.

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World’s Longest Moustaches

Story By: Madhusudan Acharya

INDIA,Girdhar Vyas, 58, belongs to Bikaner, Rajasthan. He started growing his moustache in 1985 and is confident that his wonderful moustaches are the longest in the world. He told,

Rareshot Photo by Ajay Verma

“I have been doing a lot for my moustaches to make them large and strong and I know for sure that I have the longest moustaches in the world.” Hesaid: “It was very difficult for me to get it to 22 feet. This is not easy at all. It takes two to three hours grooming daily.” “As soon as I wake up, the first thing I do is spread my moustache on the bed. Once I have done that I put some oil in a cup and I massage it with the oil. It takes around two hours to apply the oil.

Rareshot Photo by Ajay Verma

“After that, I add lemon, and black pepper powder to it, and massage it in every evening. All this helps to keep my moustaches soft.” AndVyas claims he will continue growing his fantastic facial fur forever. He said: “I haven’t shaved my moustaches for the last 33 years and till the time I am alive, I won’t shave them.” He said: “I am not able to eat everything. I have to eat selectively. I can’t even have an ice cream or I won’t be able to eat food without a spoon. I can’t eat a variety of things”

Rareshot Photo by Ajay Verma

Girdhar Vyas has been dubbed the ‘Moustache Man of India’ by locals at his village. People do call me with different names. At my village people call me ‘Moustache Man’.” “Most of people do respect me. They love seeing me. Some people come to see me everyday.” He said: I have a friend who is a barber.

He is the only person who takes care of my moustaches. I get some hair ends trimmed. I don’t let others do it.” That is why the moustache doesn’t look scraggly.” Shiv vyas(Girdhar’s son) said: People ask about our father. We definitely feel proud of him. “No matter where I go am treated like V.I.P, just because of my father’s moustache.” “Having long moustaches is the cultural trait of Rajasthan and our dad is keeping it.”

Rareshot Photo by Ajay Verma

Girdhar said: “I don’t believe in using chemicals at all. I only apply curd and lemon.“ In order to keep my moustaches dry, I put them in a bag when I take a shower.” Becauseof his long moustaches, people gather outside his house everyday. He said: “People wait outside my house and once

Rareshot Photo by Ajay Verma

I leave, they come to take pictures with me. I don’t mind taking pictures with people.” “They click pictures with me as if I am a celebrity. I feel good about it.

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Bendy Sai Priest

News by, Meenakshi Chauhan Sharma

INDIA (Madhya Pradesh) Bharat Tiwari, from Madhya Pradesh, suffers from a rare condition that is yet to be diagnosed by doctors.

 

The locals in Jabalpur, Madhya Pradesh, have dubbed Bharat ‘The Ashtavakra’ The53-year-old told,” I don’t know what this condition is but I’ve been like this since childhood, after a wall fell on me when I was five years old. “My parents tried all sorts of treatments but nothing worked.” He said,” I believe in God and I know everything comes from him. This too is from God and it shouldn’t make me sad or depressed.“I haven’t got a disease, I’m not sad so it’s no problem.

“People from different villages come to see me and they pay me respect.” “Nobodytaunts me and everyone respects me and I bless them. They are all very helpful to me. Hesaid,“I haven’t faced any problem as such. I always find ways to take care of myself. I travel like normal people and I can travel anywhere without any issues.”Also I am able to do the daily chores like I wash my clothes and I go to the market myself.


I make tea for myself and for others too.” Temple owner, Sadhavi Pragya Bharti said, “In our Hindu culture there were disabled priest and people believe he is a reincarnation of him. People here don’t make fun of him, they greet him and think of him as a respected figure in the community.“Tiwari doesn’t take any help in any form. He is proud of himself and does all his work himself. Local doctor, Dr J.K Narula has been looking after Tiwari for the past seven years and believes it is too late to begin treating the condition now. Hesaid, “He stays fit generally and the problem is related to his bones. Nobody in his family knows about his disease. He doesn’t have any past records.“Because of his age I don’t think there is any chance of him getting better but any further deterioration can be avoided and taken care of.” Bharat said,”I am happy that due to this condition people come to see me, and I am happy to bless them.”

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A Helicopter Made Out Of Scrap

INDIA (Himachal Pradesh) Vijay aged 49 years lives in palampur distt in himachal pradesh state of India. He works in his own denting & painting workshop for last 35 years. From his childhood he always dreamt of flying an aeroplane or helicopter but he belongs to very poor family so he could not afford to fulfill his childhood dream. But inspite of this he continued to dream. He was fond of making models of helicopters, aeroplane and missiles for school.

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From there one such idea struck in his mind and he started making helicopters, aeroplanes from wreckage. Though it was a tough task and needed lot of hard work but it was nothing in front of his passion. He searched different places for wreckage and started making his dream project i.e : making helicopters and aeroplane. Gradually his work was getting appreciated by local and people from far flung areas. Hotel Raj Golden purchased one of his Aeroplane. Deepak Kumar does painting for him and was working with him from last 16 years. Vijay made an aeroplane which costs Rs 1, 30,000 and it’s height is 32 feet and height 8 feet and it weighs 10 qtls.

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He made helicopter length is 23 foot and its weighs 8 qtls and has seats for 5 person. He says,” children of area are keen to watch these models, they come with their parents to take selfie with it and enjoy sitting in it.” He has order of missiles models for local school. He didn’t take any formal training to make it but he follow his passion of making models while watching discovery channel.

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He says,” I earn around 100 pounds per month but I save few money for my passion and collect scrap from different places to make my models.” These models are replica of actual aeroplanes and helicopters but it can not fly due to absence of engine and non clearance by govt. authorities. Vijay wants to continue his passion if he gets order consistently.

 

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Big Head Girl

Story By:- Sanjeev Dutta
INDIA( Himachal Pradesh) Shivani aged 15 years having 27 inches head being held up by her mother as she can no longer support its weight independently.

Rare Shot Photo by Sanjeev Dutta

Shivani Kumari from Himachal Pradesh, India has been suffering from hydrocephalus disease for the last three years after she fell. Shivani was born normal but one day she fell down while playing with her friends,” said her mother, Kushla Devi.“We carried her to the local doctor but he referred us to the higher medical institute.

Rare Shot Photo by Sanjeev Dutta

”Hydrocephalus is a condition in which there is an accumulation of cerebrospinal fluid (CSF) within the brain. This typically causes increased pressure inside the skull.Older people may have headaches, double vision, poor balance, urinary incontinence, personality changes, or mental impairment.

Rare Shot Photo by Sanjeev Dutta

In babies there may be a rapid increase in head size. Other symptoms may include vomiting, sleepiness and downward pointing of the eyes. Hydrocephalus can occur due to birth defects or be acquired later in life. Associated birth defects include neural tube defects and those that result in aqueductal stenosis. Shivani is unable to walk or sit independently due to the size of her head.

Rare Shot Photo by Sanjeev Dutta

Doctors’ at the region’s biggest government hospital explained disease is caused by the presence of water. Doctors suggested surgery which would cost around Rs. 100000 but Shivani’s father Gurmeet Singh (40) only works as a casual labourer and is unable to afford this amount.Villagers are sympathetic towards Shivani and nobody makes fun of her but they think that her condition is predestined. The family, unable to afford treatment, are hoping for a miracle so that one day she will get better.

 

 

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NASEEBA- A COURAGEOUS GIRL

INDIA,(Haryana) Nasseba,12 belongs to Haryana state of India. She was born with just one leg and no other limbs, is a living example of resilience and determination. When no one thought she would amount to anything she went ahead and proved them wrong.

Rareshot photo by Navdeep

Naseeba suffers from a rare congenital deformity called phocomelia. The symptoms of the syndrome are undeveloped limbs and absent pelvic bones. But this did not stop or break her spirit. She is a diligent student and a loving and kind person

Rareshot photo by Navdeep

What is more important is that she has taught herself to perform all her daily chores with the help of her only leg. She can eat, comb, write, paint and even create mehendi designs with her sole leg

Rareshot photo by Navdeep

Naseeba has been attending Renu Vidya Mandir, a school for Children with special needs.

 

Rareshot photo by Navdeep

After school, she spends her time tutoring kids in her neighbourhood. The little girl dreams of becoming a teacher in future. A choice she made after she experienced the love and support of her teachers.

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Tallest Policeman of the world

 

News by Meenakshi Chauhan Sharma

INDIA ( Punjab) If you wanted to snap a selfie with possibly the world’s tallest traffic cop, you might be best to bring a ladder, because Jagdeep Singh is a whopping 7 feet 6 inches tall. So it would pay not to breach any laws in Punjab, where he works with the local police.

Rareshot photo by Ajay Verma

In fact, Singh is so big that he has to have his uniform especially made by a personal tailor, and import his size 19 shoes from abroad. The towering constable is a local celebrity with much-shorter locals who stop him for selfies while he is on duty. he also face difficulties in his everyday life.His height proved no hurdle for his wife, Sukhbir Kaur, however, who is not exactly short herself, reaching a more modest 5ft 11in. She said she felt ‘proud’ being married to the tallest cop

Rareshot photo by Ajay Verma

‘wherever I go with him we get a celebrity-like respect.’People come and take photos with us, it’s great. I don’t think there’s anyone that’s taller than him in India or the entire world.’Even as a child Jagdeep towered over his classmates, and his mother, Gurshinder Kaur remembers other children laughing at his colossal height.She said: ‘Jagdeep was born different. From his childhood,

Rareshot photo by Ajay Verma

we could see his height was different from normal children. People made fun of his height but he never argued.’ He added: ‘I never felt uncomfortable due to my height. This is a gift from God and I am enjoying it. I won’t be ashamed of my height.’

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The School Of Twins

Story by Meenakshi Chauhan Sharma

Green Land Public School is situated in a small town of Punjab state of India. School is known for its 17 pairs of twin who belongs to different age groups. These twins are studying here from nursery to class ninth. Some of these twins are identical ones, so teachers get confused to identify that who is who,” said Dr. Jyoti Thakur who is principal of the school. However, having so many twins in the school has its own problems. Many teachers say that they sometimes have trouble identifying kids in the class.

Rareshot photo by Ajay Verma

Dr. Jyoti is teaching for last 25 years and five years back she took decisive step to open a school. She look it as her passion not profession. She says,” my husband who is also retired as physics professor helps me in my venture and my daughters are also understands my emotions.” School has nominal fee in its area and prime motive is to serve the society. She says,” My mother-in -law helped me a lot during my post-graduation and doctorate.” Children are very happy in this school. All twins share their food during break even their parents meet at weekends. One of the twin girl Naina said,” we all are family members now.

Rareshot photo by Ajay Verma

We have big clan, we go for shopping and spent our vacations together.” Teachers get confused of identical twins but at the same time it is really amusing to deal with twins.

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Alien Boy

 

News by Meenakshi Chauhan Sharma

Boy,21, named Anshu presumed as Alien by Indian villagers after medical condition left him with enlarged head and deep set narrow eyes. There are several diseases which are undiagnosed till now, Anshu also sufferring from such disease which has not named yet. Anshu has two more brothers and two sisters. His father Kamlesh, 46, is casual labourer and mother Rajendri, 38, is also works in fields. Kamlesh said,”

Rareshot photo by Sandeep Maan

Anshu was born with different physical traits and we took him to the local doctor but doctor was unable to diagnose disease properly and we lost all hopes of his recovery.” Anshu has large head, narrow eyes and he struggles in walking and his standing posture is different from other normal individuals. He has no growth of hair over his head. Anshu said,’’ I look different, nobody likes me. I always face sarcasm by people. After one bollywood movie based on alien, people started to call me Alien. Whenever i go to my village by train, people and children frightens by my looks and maintain distance from me.” Anshu works as labourer in generator factory based in Punjab, India.

Rareshot photo by Sandeep Maan

. He earns around GBP 50 while total family income is around GBP 150. Family is unable to afford expensive treatment, so they never visited to specialist. They are seeking govt. aid so that his disease could diagnose. Anshu said,” I want to get normal so that i can marry soon.”

Rareshot photo by Sandeep Maan

Earlier Anshu did not know the meaning of Alien so he thought, people are abusing him but later on he came to know that extra-terrestrial creatures are known as alien. Anshu said,” I ignored people but i can not close my ears everytime. I feel myself unlucky and hope for normal physical shape.”

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Ghost Boys

Rareshot photo by Ajay Verma

News By Meenakshi Chauhan Sharma

Two Indian brothers ostracised as ‘Ghost Boys’ by schoolmates because of their pointed teeth and thinning hair have finally been accepted in their remote village.Ashfaq and Mushtaq Khan, aged 11 and eight respectively, once hide behind walls in the village of Madhya Pradesh to escape the taunts and stares of others.The brave pair were treated as outcasts as residents failed to understand that they suffer from a rare genetic disease, hypohidrotic ectodermal dysplasia (HED), which reduces the ability to sweat, and causes missing teeth and thinned-out hair. There has recently been a remarkable about-turn, however, after the intervention of a local NGO which launched a public awareness campaign to help local people understand their condition.

Heartwarming photographs show the siblings have been accepted as part of the community, as they can be seen playing with neighbouring children while being splashed with water from a bucket, to cool down. Another picture shows the brothers smiling, revealing their pointy teeth and fine, sparse hair. They appear to be living a more normal life, running around happily in a public area while other villagers watch and smile at them.It is a far cry from the children’s earlier years, when they were shunned by villagers because of their appearance.The genetic disease had manifested and resulted in four pointy teeth in the boys’ upper jaw, hair peppered with grey, flat noses, dark and cracked skin and thin, reedy voices. Bullying at school, however, has deterred the siblings from wanting to continue with their lessons, particularly as classmates taunted them for looking like “ghosts”. ‘Me and my brother are considered as ghost in school. Our classmates do not play with us, in fact, they call us names. We do not want to continue our study. We feel humiliated in school,’ said Ashfaq. With their father working as a casual farm labourer and earning just £50 a month, it has been very difficult for them to visit a family specialist due to expensive medical treatment.Their mother, Abila, said: ‘We are very poor, we do not even have basic amenities like a fridge, fan and cooler

Rareshot photo by Ajay Verma

Children heat up very soon due to their disease, so they pour water over their heads every half an hour.’ Because the family lacks funds to pay for private treatment, and live in the remote village of Madhya Pradesh, where specialised medical facilities do not exist, their doctor, Mukesh, warned that their condition could get worse. Mukesh said: ‘I am the general practitioner, I cannot diagnose these children in an appropriate way. I have advised their family to visit a specialist doctor otherwise the problem can worsen with time.’Their parents are expecting a miracle for their children, they also hope that someone can come forward to help them.’ As a result of their teeth, dental treatment is often necessary in patients with some forms of ectodermal dysplasia, a large heterogenous group of inherited disorders, including HED. Some children may even need dentures as early as three years of age.

Rareshot photo by Ajay Verma

Ravi Goyal, director of Shaktishali Mahila Sangathan Samiti, a charity which helps those marginalised in Indian communities, organised an awareness campaign to explain to the residents that the two boys were not suffering from a communicable disease.’We organised two seminars for villagers with the help of school teachers. We explained to them about the disease and also that if the villagers helped the kids, they could live a normal life,’ Ravi said,’The organisation is also helping children to get treated at Lucknow’s Sanjay Gandhi Postgraduate Institute of Medical Sciences which could pave the way for diluting the discrimination, children faced from villagers, who had been labelled the brothers “ghost boys.”

 

 

 

 

 

 

 

 

 

 

 

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UNIQUE TAILOR OF WORLD

News By Meenakshi Chauhan Sharma

Photos By Rare Shot

Madan Lal, 45, from Haryana in India was born without arms but learnt to adapt to the demands of everyday life by using his feet. He explained: “I was born without arms but that didn’t bother me during my childhood. But Madan did encounter prejudice towards his disability outside of his family circle. He said: “When I was young almost every school denied me admission because of my disability. The teachers refused to admit me into the school. “I was disappointed and thought that I will show them by achieving something. “My family couldn’t afford to educate me, and I thought that the government wouldn’t help me either. So I’ll have to do something to survive in this life.” Madan decided to take up tailoring, but found it very difficult to get any training.He said: “I went to many places and met many tailors. I requested them to train so that I can earn out of it. But all of them laughed at me.

Photos By Rare Shot

“They said I could not make clothes without arms. It’s not possible. I can’t ever run a stitching machine.He said: “I went to Fatehabad to learn stitching from a tailor. He initially refused to teach me. He said, ‘You don’t have any arms, how would you do stitching?’ “I said, ‘Just give me one chance’. He said okay and within few days my teacher started saying, ‘You will become successful.’

And I became very happy.” Within a year, proud Madan had learned the art of tailoring and had opened a shop in his village. The impact on his life was immediate.He said:

“That day I forgot all the sufferings. I saw people coming to my shop to greet me. But some potential customers were still initially dismissive of the idea of a man with no arms being able to stitch.Madan said: “People used to make fun of me. They never believed that I would learn tailoring using my feet.“They would say, ‘He stitches with his feet, he will ruin our clothes.’”

Photos By Rare Shot

“Then I slowly started to win their confidence. And then a lot people started to come to me for stitching.”Madan now practices all the techniques of tailoring using his feet. He cuts the cloth by holding his scissors with them and also uses them to take measurements and operate his sewing machine. Lal said: “Whatever I have to do in my life, it’s just with my feet. All the stitching work I do with my feet.

From cutting the cloth to measurement, I have to use my feet.”And now Madan’s talent has overcome even the most sceptical of his villagers, and his exploits have made him something of a local hero. He said, “I don’t want to remind my past anymore,I have won the confidence of everyone.”

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SHORTEST WOMAN TAILOR

Story By: Umesh Saxena

INDIA (Madhya Pradesh) Santosh Kumaribelongs to Madhya Pradesh state of India. She is 28 yrs.old and 33 inches tall. She makes her living as a tailor and known for stitching beautiful dresses for women and children in the village where she lives in India.Because of her cuteness and intelligence, villagers adores her. Santosh said: “Everyone loves me in the village. I don’t have to face criticism. “Most of the women in the village who are of my age are either married or about to get married but I know I can ever feel that happiness. Father and brother who work as casual labour in farms says they had tried finding a match for Santosh but no one was keen on marrying her after hearing about her height. Santosh’s younger brother Mahavir said: “She is a fantastic woman and can do everything on her own. She doesn’t rely on us for anything. She is a wonderful tailor and makes beautiful clothes. Santosh says,“I miss a companion in my life but have no hopes of finding one ever.

Rareshot photo by Ajay Verma

I am too short and no one wants to marry me. Santosh’s desperation is matter of concern also because her younger brother Mahavir Meena, 23, is a married man with one child. Born to Ram Swaroop Meena, 51and Dwarka Bai, 46 from Madhya Pradesh in central India, Santosh suffers from an extreme case of dwarfism. She was born a healthy child and grew normally until the age of four.Mahavir said:

Rareshot photo by Ajay Verma

“She was like any other child. Healthy and grew normally but when she reached at the age of four, her growth stopped. Family consulted a lot of local doctors but they recommended us to take her to big hospitals in cities for treatment.“But we have no money and somehow make our ends meet. Big doctors will ask for a lot of fee that we cannot afford,” added Mahavir. Santosh says: “I have accepted my fate. I understand I cannot grow tall anymore or get married. All I want is to continue living happily and my stitching work so I can open a shop someday

 

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26-pound tumor found inside stomach

INDIA, A woman is relieved after having a 26-pound tumor removed from her body. Shortly after the 70-year-old from India was admitted to the hospital with what appeared to be a pregnant-looking stomach, doctors discovered it was an enormous ovarian growth.Lila Bai was diagnosed with a grape-sized cyst two years ago,

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but didn’t have enough money to have the surgery to remove it.Scans show the tumor grew to be 14 by 16 inches, causing the woman so much pain she was rushed to the hospital where surgeons removed the 26-pound mass. Had the woman arrived any later at Indubhai Parekh Memorial Hospital, doctors said, the tumor could have burst.Even if it would have been a little delay in surgery, it might be burst inside the body,”

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said Dr. Indu Singh. The physician added the massive growth has been sent to pathological lab for testing.”If remnants are found in body, it may be treated by chemotherapy,” another doctor on the team, Dr. Jitender Singh, said. Mrs. Bai is recovering and should be discharged in three days.

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snake body man

Story By: Meenakshi Chauhan Sharma 

INDIA, (Madhya Pradesh) Om Prakash, 35 belongs to Madhya Pradesh state of India. He is suffering from a severe form of inflammatory skin disease called Erythroderma or ‘red man syndrome’.His condition is so severe that his skin has turned thick black and he has cracks all over his body.To keep it soft and flaking off, Om needs to moisturise his dry skin with water every two hour. The condition also means he cannot walk as the movements create friction and cause his thick skin to crack open and bleed profusely. However, despite his painful and pitiable ailment, the young man is loved by everyone in his village who see him as special and a kind man.Hailing from a tribal community, Om is lovingly called Tirki-meaning flaky skin in local dialect, by villagers who donate him oil and soft cloth to rub his itchy skin. Om says: “I have this disease since childhood. My whole body itches badly, at times my legs start bleeding. I have pain and inflammation all over my body.My skin is so dry that it is very thick and flaky.“I shed skin like a snake every ten days. This is why people have named me Tirki.“But I am fortunate as no one makes fun of me. Despite my skin resembling a snake skin,

Photo by Rare Shot

people behave with me nicely. They offer me tobacco, clothes and food. They treat me like a special person. Born into a tribal community to mother Gulabo, 50 and father Bhambhu, 55, from Sarjupura Bachedi village in Madhya Pradesh in central India, Om started showing the symptoms of the condition just five days after birth.His four elder brothers, all daily wage labours, are not affected. Umaid Prakash, 40, his eldest brother said: “When he was a kid my mother took him to ojha (faith healers) but his medicines never helped heal his wounds. They told us he is cursed by God and he would always suffer like this.“Later, we took him to various camps at different villages but we were told he is in need of proper medical treatment,

Photo by Rare Shot

But we had no money to take him to cities to pay for medicines and doctor’s fee. We took small loans from villagers for bus fare to visit these camps but the loan was not sufficient to go to cities.” Om says,“I hope one day I could save enough to see doctors who can give me medicines to treat my condition.”

 

 

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AIRPLANE RESTAURANT

Rare Shot Photo by Ajay Verma

INDIA ( Haryana) Shruti Kakkar belongs to Haryana state of India, conceived an idea of converting Airbus A320 into a multicuisine restaurant. This airplane is parked at NH1(Ambala-Delhi) road. After collecting boarding pass from the reception on the ground, you will be led into the cabin of aircraft. Shruti, who was an air hostess with Jet Airways, and her husband Kshitij Kakkar came up with this idea. It took us almost a year to set this up as the aircraft came disassembled from Delhi. “We wanted to do this for those who don’t get a chance to fly to other destinations.

Rare Shot Photo by Ajay Verma

The response has been overwhelming despite the fact that we did not advertise the launch of the restaurant. We got a lot of traction through social media and word of mouth. It gets so crowded during the evenings that guests have to wait for two hours sometimes,” says Mrs. Kakkar.They have staff of around fifty persons from different states. They are dressed in attire resembling ground staff and crew members. Shruti claims that they have the first virtual 3D flight simulation gaming set up in India inside the aircraft. The other one is in Switzerland.

Rare Shot Photo by Ajay Verma

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Progeria SINGER

 Meenakshi Chauhan Sharma

INDIA,( Madhya Pradesh) Shreyash Barmate, aged 11, who lives in Madhya Pradesh, India, has progeria – a condition which causes rapid aging in children.The condition leaves Shreyash suffering from baldness, heavy wrinkles and weakened limbs. The Progeria Research Foundation believe the syndrome is so rare it affects around 1 in 20 million people. But despite the challenges posed by the syndrome, Shreyash remains incredibly positive about his daily life and his future.He said: “I play instruments, I sing and I ride a bicycle and drive a car. I go swimming as well.”

Rare Shot Photo by Ajay Verma

I know I have a condition called Progeria but I am okay with it. It’s not coming in my way at all. This condition is not affecting my dream of becoming a singer.” Shreyash has an older brother and a twin brother, neither of whom have the condition. While Progeria is caused by a genetic mutation, experts do not believe it is hereditary. Shreyash’s dad Arvind Barmate, a government employee said: “He has progeria but he never lets us feel that he has some disease. He always spends his time playing and singing.“He wants to become a singer and he is actively taking part in singing. His condition is not stopping him at all.” Doctor Girish Budhrani, the family’s paediatrician says that despite the rare medical condition, Shreyash is an energetic and positive boy. “I see him as one of the most positive children in our society. If you go to normal children you will see they wouldn’t be as jovial as Shreyash.” Shreyash said: “I know we can get bullied but all my friends respect me and play with me all the time. I have never been bullied by anyone”.

Rare Shot Photo by Ajay Verma

Although Shreyash’s body shows signs of extreme ageing, he has the mental age of a regular 11-year-old. But his condition does require regular check-ups. Dr Budhrani said: “Progeria is not curable. Shreyash needs a regular check up and we have to monitor his every single problem. He is a very active boy but at the same time he is having a rare medical condition so he needs to get checked every week. “But he has a lot of talent. If you listen to his singing, he’s one of the most fabulous singers you’d ever come to know.”

Rare Shot Photo by Ajay Verma

Shreyash said: “I have stopped thinking about progeria.I want to become a singer when I grow up, and I am going to get famous as well.

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Biggest Hands Boy

News by Meenakshi Chauhan Sharma

Photos by Ajay Verma

INDIA,( Uttar Pradesh ) 12-year-old Tarik belongs to Uttar Pradesh state of India. he has ‘big hands’ since the birth.When his father was alive he took him to the local doctors a lot. But his father passed away and he only has his mother now,

so he can’t get any treatment.Tarik’s older brother, Hargyan, takes care of Tarik and helps him with simple daily tasks that his hands prevent him from being able to do.It is difficult for Tarik to complete his daily chores like bathing, dressing, and eating.

The condition, which has not been diagnosed by doctors, has caused Tarik’s huge hands to grow to a length of 12 inches. .Sadly that has resulted in Tarik being bullied by his neighbours and friends.Tarik said: “It’s just we don’t have money for the treatment doesn’t mean it can’t be cured,

.” Every single doctor suggested to get Tarik a proper treatment. He has to stay like this till they have some money for the treatment. On a recent visit, Dr Pawan Kumar Gandhi said: “Tarik’s problem is actually a mystery to us. We’ve never seen a patient with this before.

Chances are low but nothing is impossible. In the age of science, there is lots of research, so nothing is impossible.Tarik said: “I want to get rid of this condition. I want to become like other kids who go to school everyday and play like normal  kids. I see a hope that I will get normal hands.”

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Old man looks like a child

Rare shot Photos by: Ajay Verma

Story By :  Umesh Saxena

INDIA (Madhya Pradesh) Basori Lal aged 50 years measures just 29 inches tall lives in Madhya Pradesh state of India. He is living with his younger brother’s family. He stopped growing after the age of five.Unable to afford to see specialists, He has never been thoroughly examined by doctors and as a result, this causes of  stunted growth which remains a mystery .But the 50-year-old refuses to let his small stature get him down.He has become a local celebrity in the Madhya Pradesh region, and is regularly visited by curious travellers .

His brother, Gopi Lal, 55, who is of regular height and lives with Basori, explained that the family feel blessed to have him in their family.He said: “People from different villages come to our house to see my brother. That’s a blessing for us.“We feel proud that people love and care for Basori.” toddler himself is quite happy with his unusually diminutive stature.He is treated like a hero in his village.

Basori said that this small stature doesnt impact on his life.He said,“Whatever I am is okay. I don’t face any problems because of my height.”But when he was younger, strangers taunted him for being short. He said: “I don’t have a problem with my height.”I work, live and sleep like other people. I also eat like normal people.

But the family’s financial situation meant that Basori was never given a thorough medical diagnosis. He goes to flour mill owned by family everyday. Basori celebrate every evening of his life with whisky, dance and music.He is full of life and he has no regret in life infact his way of living is source of inspiration for others also.

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Girl With Sleeping Beauty Syndrome In Kerala

News by Meenakshi Chauhan Sharma

A FOUR-YEAR-OLD girl with a rare medical condition sleeps up to FIVE days in a row. Liya, 4, from Kerala, India is reportedly the youngest girl that suffers from Kleine- Levin Syndrome, also known as Sleeping Beauty Syndrome. The condition causes Liya to fall into deep slumber and wakes only during when she needs to eat or go to the toilet.

PHOTOGRAPH BY Rare Shot News

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Indian baby with an additional head attached to its stomach

Indian baby is born with an additional head attached to its stomach
News by Meenakshi Chauhan Sharma

Indian doctors have given a new lease of life to a baby girl who was born with a head attached to her stomach.They managed to remove the appendage of her parasitic twin in a complicated four-hour operation at JK Lone Hospital, in Jaipur.It was feeding off of her blood supply – depriving her of vital nutrients needed for her healthy development, surgeons said.As well as being born with an extra head, which had no ears and eyes due to being partly developed, the infant also had a third hand. An unnamed 21-year-old woman presented herself to doctors at the Ram Snehi Hospital, in Jahazpur(Bhilwara) after experiencing pain during her pregnancy.She was immediately referred for a sonography scan and an ultrasound and were told that she was carrying twins – but were unaware they would be parasitic.Unlike conjoined twins, one is incompletely formed or wholly dependent on some bodily functions of the complete foetus. Cases of parasitic twins are rare and believed to account for just one per one million live births, according to medical literature.Dr Vijiyeta Garg, a gynaecologist who looked after the woman, assured the family that both mother and child could be saved.However, her 24-year-old husband, who works as a farmer, insisted that her life was a priority and the baby should come second,The operation on April 26 proved to be a success – despite the young couple believing they would lose their first child, local reports suggest.Dr Pravin Marthur, of the hospital’s paediatric unit, said: ‘This is one of the rarest cases of parasitic twin.The parents told us the mother had undergone sonography and other tests but were not told about carrying an underdeveloped twin.They were shattered when they saw the baby. We had to convince them to give us a nod for the surgery to save their daughter’s life. The baby is recovering well and is being breastfed and will be discharged later this week.
Photo by Rare Shot News